Thursday, March 19, 2015

Kicked off all all HCV Facebook Support Groups

I have to write about this, it's never gone until I put it on paper, but in the last few days I was taken out of most of the Facebook HCV Support groups, and the irony is no one had the decency nor the courage to confront me or explain if I had broken any rules

I am beginning to believe those that are administrators for such groups are on power trips and truly have no life outside of managing groups on Facebook .

I am not a conformist, never have been and will definitely never will be. I say how I feel. and I don't bologna anyone in regards to my feelings.

The last chat I was involved in was a woman complaining that now that she is cured she has separation anxiety from no longer having HCV. I chimed in, that I would not let my illness define me, and once I am cured , and the gate is now open I'd run like a horse out of the starting gate at a race track, I'd run like a Thoroughbred. I wouldn't want to look back, I'd want to live the life I've been missing for the past years.

Now, I don't know if that's it, I've been pleasant and supportive of everyone that is just beginning treatment and ending treatment. But, when you ban a person in the middle of treatment I just find that horrid, power hungry, and reprehensible .

Its like being asked to leave AA cause you drank or your Doc left you in the middle of surgery.

I was stigmatized with this disease before I joined online support groups, now I'm not allowed in any.

Such is Facebook verses real life I suppose. Its only a sign to me that it is time to move on and focus on whats next that God has in store for me.

I believe God has giving me a gift of life, and there is no time for me to hold animosity towards anyone, it would just add toxicity to my heart and sou.

When this is published I will never look back, for I truly know that they have more problems than HCV and the side effects of Harvoni, there are underlying issues and power trips, that they alone should be ashamed of. I can hold me head up and go on.

After all, it's only Facebook. . . .

If any one is interested in liking and joining my Face Book Page, called Cat & Harvoni, it's a virtual diary I write in each day showing how I'm managing on the Harvoni and any if at all side effects. It's been going now for 14 days I'm half way through my first month.

Thanks and don't take life and people so seriously there is something much greater for us all.

Cathie Cats

5 comments:

  1. Sorry to hear that. It sounds like karma. What goes around comes around. Maybe if you would forgive my impulsive stupid mistake and take me back as a friend, we could get through this together. What do you say? Can you give me another chance?

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  2. I'm starting havaoni Monday and need all the support I can get, I'm scared and I don't need any negative or finger pointing. I want someone who will be honest so I know what to expect not only for me but my family. Thanks

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  3. I agree with your assessment of the powers at play in many support groups. if you still need support please feel free to contact me = Alan Weathers = weathersaloysius@aol.com Thanks for your post!

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  4. Totally agree sister. Some HCV support groups are almost neo nazi like. I'm new to the whole FB and support group scenen. Oh boy, they're very uncouth.

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  5. If anyone needs any help accessing treatment please email Melissa McKnight at hcvmeds@gmail.com or visit our non profit soulofhealing.org and harvonipriceinindia.com

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